Written by Anabel Monge, Communications Manager for the Illinois Red Cross

Think back to your high school years, a time of growth, discovery and finding your purpose. For three students at University High School in Normal, Illinois, that purpose became clear through service and a commitment to helping others.

Joshua Walker, Justinne Walker and Giselle Lee are working to raise awareness about sickle cell disease and support the people and families affected by it. Driven by passion and vision for change, they founded The Caring Cells Project, a youth-led organization focused on education, advocacy and community impact.

"For me, the most meaningful part has been seeing firsthand how education sparks change,” said Justine. “Raising awareness is about so much more than just sharing facts. It’s about giving a voice to patients and their families."

Their interest began during their freshmen year after learning about sickle cell disease and the disparities surrounding it.

“We realized that compared to other genetic diseases, sickle cell disease is still widely misunderstood by the public,” said Joshua.

Sickle cell disease is an inherited red blood disorder that affects more than 100,000 people in the United States, most of whom are African American.

“Through the Caring Cells Project, our goals are to educate people about sickle cell disease, advocate for those living with it, and support patients in our community,” said Giselle.

The disease causes red blood cells to become hard and crescent shaped, which can block blood flow and lead to severe pain, organ and tissue damage, and even strokes. For many people, these symptoms can disrupt daily life and make routine activities difficult.

Blood transfusions are often a lifeline for people living with sickle cell disease. Because the most compatible blood donations often frequently come from donors of similar racial or ethnic background, increasing the number of Black blood donors is critical. Understanding the need, The Caring Cells Project has hosted several blood drives to help support patients who may require frequent transfusions throughout their lives.

Beyond blood drives, the students have created blankets, written encouraging cards and explored care package ideas for patients and families affected by the disease.

Joshua and Justine’s mother, Gillian Nxumalo, has watched the project grow from an idea into meaningful action.

“This project is special because it was born from compassion,” she said. “I’m proud not only of what they’ve accomplished, but of the ripple effect they’ve created. A single blood donation can change a person’s life, and my kids are inspiring others to step up and help.”

Through the Caring Cells Project, Joshua, Justine, and Giselle hope to amplify the voices of people living with sickle cell disease and bring greater awareness to a condition that they say is often overlooked.

Their work is a reminder that young people are not just the leaders of tomorrow. Through compassion, advocacy and action, they are making a difference today.

To learn more about sickle cell disease, and to sign up to donate blood, click here.